At the risk of making my mom feel bad, I write this post. I write it though with good intentions. I need her to know that I know. I know she's in pain and I know how hard she fights.
When I was a baby my mom was in a horrific car accident. In her review mirror, at a stop light, she saw she was about to be hit from behind and instinct made her throw her hand up to the dashboard. When the people hit her she went through the dashboard with her right arm. It caused major damage.
After some time, she was able to go back to work as a maternity nurse. One day a lady fainted on her, and again instinct took over and she tried to catch her with that damaged arm. It caused more major damage to her arm. I don't know everything that happened because I was little and have never read her charts, nor am I a doctor. I do know that it caused irreparable damage. She had many surgeries on it, each one making it worse. Physical therapy also made it worse. It caused chronic pain and headaches that she's been fighting for as long as I can remember. She was not able to go back to the job she loved.
On the outside she looks fine. Unless you know her. Those of us who have lived with her can see when trouble is brewing even when she is faking it for everyone else. The medications she needs have caused other health problems, in addition to some genetic health issues.
When I was four-years-old my mom and I were standing in the kitchen. It's one of my earliest memories. She fainted. It happened often. Without a pause I slid a kitchen stool over to the washer and dryer, climbed up, got the smelling salts, jumped back down and put it under her nose. She jumped awake and wondered what had happened. I helped her up and we moved on.
My mom is a go-getter. She hates being laid up. She pushes too hard, too often, and often ends up in bed for several days trying to recover. She also loves to have fun. When I was a teen she and my dad loved to go country swing and western line dancing, in fact, they taught it for years. As often as I could I went along so that I could do the swing part of the teaching so my mom didn't have to lift her arm up and wouldn't get as injured. When I wasn't there, she did the swing anyway, despite the pain, because it was such a joy to her and she was willing to suffer the consequences. I remember getting upset at her many times and telling her she shouldn't do so much and then be sick for days, her answer was, "I want to have a life."
There were times when I'd get very upset. When I was 9 there was something she couldn't go do with me because it was too much. I don't remember what it was, but I do remember quietly telling her that I wish I had a mom who wasn't sick all the time. She started to cry and I felt horrible. I apologized but you can't take that stuff back. I was a little girl, so she understood, but I still feel terrible.
Throughout the years she would pass out in the shower the most often. When she was really sick, she'd come tell me she needed a shower and this was a clue for me to listen in and come help her if she needed it. Many times when she fell she'd hit her cheek or browbone on the soap dish or side of the tub and would break them. She was often covered in bruises.
Every two weeks she would need to go to the doctor. I'd get so angry when I had to drive her. I hated it. I was only worried about me and my time and how bored I'd get. Looking back, I wish I'd realized what a simple service it was.
When Caleb and I were finishing up school, we moved in with my parents for a time. My mom hadn't been feeling well for a few days so I went to check on her. She was sitting in her armchair, her head to her chest. I called to her several times and got no response. I slapped her several times and got no response. Then I felt for a pulse but by then I was pretty wired and shaking. I couldn't feel one so I screamed for my dad. He came in and said she had a weak pulse but it was there. We called the ambulance and got help for her. It was one of the scariest moments in my life. Caleb still talks about it as well. I think it was the first time he realized what life had been like for my mom and our family.
Despite all of this, she was at all of our events, we were not left lacking. Our parents took us on vacations and camping and all sorts of fun things. She suffered as much as she could so that we could have a good life and we love her for it.
This is only a small portion of stories I could tell. I am not sharing this for sympathy for me but I am sharing it for sympathy for my mom and others who suffer from chronic, not visible to the eye, pain. I get angry when I hear of people discussing others' pain or illnesses. For one, I can't figure out why they think it's any of their business. Number two, it's unfair to the people suffering it as well as to the people who have helped care for them and nursed them through it for years. It is hurtful. Unless you are their doctor (which my mom has had the same doctor for as long as I can remember), or the people who have lived with the person behind closed doors, you have no business worrying about their medications and their diagnosis.
If you don't have a family member with invisible chronic pain you probably don't even know what I'm talking about. If you do, however, you know. You know how hurtful and judgmental people can be.
There have also been amazing, loving people, who have helped over the years. People who would stop by and see how sick she was and would bring meals. People who helped her with kids and grandkids when she needed it. People who come and vacuum for her and other things that are hard to do with a pounding migraine and hurt arm. We are thankful for those people. The people who have just loved her and just loved all of us. To them, THANK YOU.